Myonet - Global Myositis Network

MyoNet is a global multicentre, interdisciplinary research project on inflammatory myopathies, myositis.

MyoNet involves neurologists, rheumatologists, neuropathologists, pediatric rheumatologists, basic scientists and statisticians, with expertise in genetics, proteomics, epidemiology and clinics.

New participants with an interest in understanding the pathogenesis of myositis are welcome to join MyoNet.

NEWS

15 January, 2018

New book published, ‘Myositis’, authors Dr Hector Chinoy and Professor Robert G Cooper

The idiopathic inflammatory myopathies (IIM) are a rare group of autoimmune diseases, negatively affecting the lives of an estimated 250,000 people worldwide. Delays in diagnosis often occur owing to a lack of recognition of disease presentation, or misdiagnosis, both of which can lead to muscle atrophy.

This new addition to the Oxford Rheumatology Library series focuses on providing a summary of what is currently understood about the epidemiology of myositis, controversies in diagnosis criteria, clinical features, and the current paradigms for treatment and intervention. Designed to bring together the multi-disciplinary involvement of healthcare professionals for IMM patients, this is the first easy-to-navigate guide for the practical management of myositis.
This is an essential guide for both physicians and trainees in Rheumatology, Neurology, and Dermatology specialities.

More information here

13 November, 2017

Myositis masterclass – Dr Hector Chinoy – 7th-8th December 2017

Myositis Masterclass

Date: 7-8 December 2017

Venue: Innside Melia Manchester

Convenor: Dr Hector Chinoy and Dr Patrick Gordon

To Book and for more information please click here

Myositis Masterclass is a two day educational inflammatory muscle course which provides a comprehensive myositis training package that will give attendees a complete picture of neuromuscular assessment and to improve overall quality of care.

Course objectives:

To promote awareness and disseminate best practice within the field of idiopathic inflammatory myopathy.
To keep delegates up to date in new clinical developments within the field of idiopathic inflammatory myopathy.
To enable knowledge transfer of standardized classification, examination methods, use of specialist diagnostic tools and assays, biopsy techniques, interpretation of muscle histology and treatment protocols.

Who should attend

Trainees and consultants with an interest in muscle disease – from Rheumatology, Neurology, Dermatology or Internal Medicine.

Programme includes:

Clinical primer in myositis.
Treatment and translational aspects
Diagnosis and monitoring
Pitfalls in myositis
Neurology primer

Full programme will be available shortly

Confirmed speakers

Dr Dan Creamer, Consultant Dermatologist, Kings College Hospital, London
Professor David Hilton-Jones, Consultant Neurologist, John Radcliffe Hospital, Oxford
Professor David Isenberg, Consultant Rheumatologist, UCL
Dr Dan Sado, Consultant Cardiologist, Kings College Hospital, London
Dr Harsha Gunawardena, Consultant Rheumatologist, North Bristol NHS Trust
Dr Hector Chinoy, Consultant Rheumatologist, Salford Royal NHS Foundation Trust
Dr John Ioannou, Reader and Honorary Consultant in Adolescent and Adult Rheumatology, UCL London
Dr Jonathan Harris, Consultant Musculoskeletal Radiologist, Salford Royal NHS Foundation Trust
Professor Neil McHugh, Consultant Rheumatologist, University of Bath
Dr Patrick Gordon, Consultant Rheumatologist, Kings College Hospital, London
Dr Ranjit Ramdass, Consultant Neurophysiologists, Salford Royal NHS Foundation Trust
Dr Ronan MacDonagh, Consultant Neurophysiologists, Salford Royal NHS Foundation Trust
Dr Stefen Brady, Consultant Neurologist, Consultant Rheumatologist, North Bristol NHS Trust

11 September, 2017

Euromyositis registry and MYONET meeting 1st-2nd February 2018, Prague, Czech Republic

Euromyositis registry and MYONET meeting

1^st-2^nd February 2018, Prague, Czech Republic

The meeting will foster collaboration between centres involved in myositis network and will discuss various aspects dealing with Myositis registry and current and future cooperation.

Venue:

Lindner Hotel Prague Castle
Strahovska 128
118 00 Prague
Czech Republic

Phone: +420 226 080 000
Fax: +420 226 080 200

https://www.lindner.de/en/prague-hotel-prague-castle/welcome.html

The expected number of participants is around 50 for whom the meeting and accommodation for one night will be covered by organizers.

Please register at: https://www.congressprague.cz/en/kongresy/myonet2018.html

Organizing office:

Congress Prague, Nad Obcí I/24, 140 00 Prague 4, Czech Republic

GSM: +420 724 264 870
Tel: +420 241 445 813
Fax: +420 241 445 806

office@congressprague.cz

www.congressprague.cz

MORE NEWS

ACTIVITIES

INCREASED MYOSITIS RESEARCH FUNDING

The Myositis Association is pleased to be able to offer more funding and larger grants than in recent years. Funding is available for up to $250,000 over 2 years for research into any type of immune-mediated myositis. Also, some of the available funding is specifically set aside for fellowships.

Research Fellowships – to support a young physician, or PhD scientist, who is beginning a career in myositis research in the laboratory of an established myositis investigator. Research Grants – to support new or innovative myositis research projects.

Letter of Intent due by May 15, 2015
Full application due by June 15, 2015
Funding decisions made by September 15, 2015

For more information, visit www.myositis.org or email TMA@myositis.org.

New website and new name

Since the EuMyoNet now has evolved and also includes groups outside of Europe, the Steering Board has decided to re-name the network to Myonet. In conjunction with this change, this new website has been created. During 2013, the old www.eumyonet.eu site, will be linked directly to this side, but from 2014 the old address will not be valid.

Mid-term report

The project has now been up and running for a little more than 2 years, and the Coordination team has just submitted the mid-term review. The outcome of the review will be communicated to all members of the consortium when available.

MORE ACTIVITIES

International collaboration